weak.

Today was a great day! Things went well all day and I wish so badly I had posted earlier. My spirits have been lifted and one thing I have learned as no matter how many times you fall while trying to do something you can always get up and try again. It's hard work yes. But it's worth the work. I got some thank you notes written and I cleaned up my room a bit. Things are a little more difficult when your legs are taken away but I have been managing non the less.

I received a lovely card and painting in the mail today and that just topped all my spirits. I am so happy that I am home and I really can't wait to be back to my teen life. It kinda seems unfair to be watching so many other friends go on with life and I am stopping with some IV's and a wheelchair. Mom has been encouraging me with thoughts of prom. I got a dress so it's kinda becoming a little more real but, that's in a few months so it's something nice to look forward to. I have learned PJs can become one's best friend very quickly!! Tonight I think I am going to get a good scrubin' in the tub and head to bed early. Tomorrow friends are coming over and I am in for a low key visiting day.

My OCD has been acting up so with that we're going to put it to good use and I am going to organize all of the IV supplies and file all of my medical records. Something that has been needing to be done but kinda put off due to someone who won't be mentioned that keeps ending up in the hospital. :P

I would definitely suggest This Man- Jeremy Camp to anyone reading. Take a listen! It makes you think... (Credits go to Josiah for suggesting this song to me.) Life isn't all that bad and things will get better...

I am pretty weak as the night goes on and will update more another night hope this finds everyone doing well! Have a wonderful weekend,

Victoria

Everyone who serves cold cut carrots with spahgetti raise your hand please!

Hospitals always amuse me with their food and what-not so, why not start out on a light note like: cold cubed carrots with spahgetti! This is what they expected me to eat. No wonder my

levels are low! After eating nothing at all for days the transferred me to this type of diet and it didn't go over so well... But hey! It made for a good title.

Anyhow, I must say I am home now! Things are going O.K. I can't complain because being home feels great but is a little scary because I am on 3 new meds! Although things do have a way of working out and I am a strong believer in that. So onward and upward Monday I go to a new Chiropractor which I have observed a few appointments of his and feel he will help my body get back on track. He is good for herbal supplements and knowing what's going on with that kinda stuff too. So I am going to give it a go then within the next week I shall be starting PT and getting back on my feet as soon as I can!

My appetite has been to be desired I refuse to eat like anything and find a lot comes back up with eating. Nontheless I try little bites here and there. I probably couldn't keep a baby chick alive at this point. The doctor said that it would come with time and DID YOU KNOW that McDonalds milkshakes are like a cureall? I can eat one large one of those keep it down and get nutrients from it! Practically as healthy as ensure! My doctor told me that and within an hour I had not one but 4 milkshakes in the freezer with my name on them.

I thank you all for your prayers and your support this road is long and with each twist and turn comes uncertainty. There are so many people behind the scenes in my life that have done things for me sat at my bedside and helped me through these hard drifts of time. I can't possibly name them all but, I do thank the women's group from church. Upon being admitted to Corning they sent two large bags of things for me with socks, lotions, a photo album, and many other things to help with my recovery. All of your generosity is so appreciated I can't even begin to express how thankful I am to have such a loving group behind me.

Nothing is set in stone and within days treatments could be changed. But it's only the beginning and good will come out of it I am sure! I missed my friends the most especially when I was in ICU! Let me tell you if you need an amazing support system there are a select few people I would suggest adopting. I missed my AIM chats with whom shall remain his nickname "batman" when I couldn't sleep at night! So although scary it's exciting to be home.

recap: For those of you who didn't get e-mails and were worried about me I have placed the e-mails my friend Sarah and my Aunt Debbie. (Thanks so much Sarah and Aunt Debbie!!! I can never repay you for all of the wonderful things you have done for my family and I!)

2-18-2008

I just wanted to let all of you know that Victoria is unfortunately back at the hospital due to Lyme complications that occurred yesterday. I am sure that she would love to receive get-well wishes, but I know that she will be changing hospitals soon, so I ask that you email them, or send them to our PO Box (PO Box 74, Big Flats, NY, 14814), or her home address if you know it. I will be sure that she gets all the messages!
Thank you in advance!
Sarah Lynch

2-18-2008 9:30 pm (prayer chain update)

Debbie Connett sends the following update and request for Victoria Wilcox:**"Update on Victoria, She was taken to Corning hospital on Saturday. She was transferred to Arnot today, Monday. She had a PICC line inserted today. She is now, 9PM havinga bad seizure which they said could happen. Our request is that she suffers no permanent damage to her vital organs asher body deals with these seizures. Her heart and Kidneys are what we worryabout the most. Pray the antibiotic will do it's work and she will come out of this fairlyspeedy. The family appreciates all the thoughts and p[rayers sent their way.It is 9:30Pm and they have moved Victoria to ICU. This was a very bad seizure."

2-20-2008 (Sarah's Update)

I just wanted to let everyone know that Victoria will be unable to answer any phone calls or texts on her phone over the next few days because she has been put in a drug-induced coma. I am told that she had a very bad seizure last night after being put on a new picc line and ended up being put on a respirator in the ICU. They are administering adti-seizure drugs and will slowly take her out of the coma over the next few days. Please respect the family's wishes and do not call or text her until you know she can respond.. I will let everyone know. I will be sure to forward any emails her way as soon as she is better too! The last ones reallt lifted her spirits!
Thanks
Sarah Lynch

2-20-2008 (Prayer Chain Update)

"Praise, they are waking Victoria up today, She is now breathing on her own. Not sure if she is herself yet. Will send further report later today. Debbie

2-20-2008 (Sarah's Update)

Thank you so much to you all for all of your prayers! Here is some good news: Victoria has been taken out of the coma she was placed in and was even able to talk on the phone with me today! The reception was not the best, but she was still able to joke with me even though she cannot eat and sounds very weak. Right now that is about all I know, but I will send another update when I know more.
Sarah Lynch

2-25-2008 (Prayer Chain Update)

**"We have just received word from Victoria Wilcox's mom, Denise. She is asking for urgent prayer for Victoria as Victoria faces further complications. Prayfor strength for this family as they walk through this ongoing battle withVictoria. She is currently at the Arnot."
(I think this is when I passed out during PT gave us all a little bit of a scare worrying something more could be wrong.)

So that's the re-cap of the last almost 2 weeks of my life rollercoaster as usual. I thank you all for your support and I enjoyed reading all of the well wishes they gave me a lot of hope and encouragement. I will continue to keep you updated in the days to come.

My thanks,

Victoria

Feeling not so good...

Hello everyone! This is Sarah, Victoria's friend leaving a message today because Victoria is unfortunately unable to leave one herself, as she is back in the hospital. I am not 100% sure of everything that happened, but I know that it is due to Lyme Disease. She had not been feeling well all week and on Saturday evening, after a busy day, she began to seize. She was brought to a hospital in Corning, NY and has now been brought to the Arnot Ogden medical Center in Elmira, NY, as of yesterday.
Again, all this info may not be accurate, but that is all I know. Please check back again after I have seen her (which will hopefully be tomorrow!). Please feel free to leave Get-well messages in the comments section and I will be sure that she gets them.
Sarah Lynch

Ignorance is Bliss

So the days have been seemingly long lately and I hope the pain I have been experiencing along with the locking of joints will pass soon. I think it's due to the weather and hope it will be gone soon.

I wish for one moment I could understand the disease I was going through and place it in words that Health Care advocates could understand. I don’t know how to explain the agony I have been facing on a daily basis. People are a little upsetting and I am kind of at my wits end with the ignorance of the medical community in some areas.

I cannot wait to be the healthy kid I once was again. I feel like 16 passed before I even got to live it! I have high hopes for 17. I cannot wait to get better and I am getting more and more ideas of what I will do when I am my 100% self again. Kind of just a blah week this week, although my Birthday party was this weekend and it was nice to have laughter filling me and have some friends over.

From that little bit of time with them I felt like I knew I could get better it’s just a matter of time. I can’t wait to go back to school and have my strength back. I have high hopes!

Signing off for now,
Victoria

Superbowl.

So lets see here, on this day about 16 years ago I was taking my first few steps who would've known those 16 years ago just a day or so before my 1st birthday that I would be where I am today.

This weekend has been busy, but exciting and full of sleep as well. I haven't been feeling great so plans that once were made were cancelled and then other plans were placed in. Church was today which is an all time favorite of mine and well enjoyed saw the familiar faces and received many a joyful hugs and felt loved. It was a good day emotionally and kind of painful day physically but I pulled through to see the little boy I babysit for open gifts and do the birthday thing! I can't believe he is five!!

So now upon my 17th birthday, which is tomorrow and I plan on spending sleeping in and enjoying my day. :) Kind of nervous about the upcoming doctors appointment, which is also conveniently placed right on my birthday. hehe. I really know how to live it up! I might be getting the picc line tomorrow or Tuesday but definitely in the upcoming week. Which means good and bad. Good in the fact that I hope this is going to be getting me better and that I got amazing results from IV last time. Bad in the fact treatment is extremely expensive and taxing on the whole family. So who knows what these days will bring but I have strong faith things will be cleared up someday.

Also, feel free to check out the video I put up on youtube: http://www.youtube.com/watch?v=mpB287Yx9iQ

Hope everyone is feeling well and doing great!
Have a good week,
Victoria