Stepping out of the door
feeling the heat against my skin
chirping and wings flapping as birds fly above
the vibrant color of the flowers that everyone loves!
We take these days of warmth for granted-
Until the days of summer pass and we're in for the winter feeling a little down cast
Bzzzz to my right and the sound of children laughing...
A kick ball game is just down the corner and bee's and gnats are in the air.
Nothing taught the little seeds to grow.
Nothing taught the children to laugh.
It's a response to a stimulus and today miracles filled the air!
It's funny how many of my friends complain about going to school, homework, friendship drama, long distance walking, and all of these other little things. That to me are HUGE- I never dreamt there would be a day I would strive to be back in the hallways of school and that I would love to have the understanding of information to actually sit down and understand a large piece of literature. It's interesting how life unfolds- how things you never would've thought could happen DO happen and how much you really learn through your day to day contact compared to your text books. I am amazed at how life is and how things unfold each day is just another thing unexpected or completely expected it- is always not exactly how I thought it would be.
After my Question and Answer post was posted- I received 2 more questions...
Q: Are you still walking with a cane/ walker?
A: Yes, I walk with a cane still. My walker has been ditched for now but I rely heavily on the cane. Sometimes the walker comes in handy especially late at night. My muscle tone right now is very poor and through this we have learned the importance of Physical Therapy. After taking a month off from Physical Therapy and recovering from the two surgeries I have started it up again and we're hoping slowly- I will be able to get back on my feet even more in the days to come.
Q: What do you plan on doing as a career?
A: I have always wanted to go into the medical field since I was a small child but the dream has become a little more realistic with the hands on experience that I have gotten through this disease. My first hope was to become a Psychology major but more recently I have been looking into Pre- Med programs. I am hoping to potentially become a doctor but in what field I am not entirely sure. There are many options and I would like to explore them all a little more before thinking about exactly what I would like to do!
Hope these Q&A periods help those who are a little confused about what's going on or curious to be aside from the disease! If you have any more questions feel free to e-mail me or leave it in a comment.
She is the leader of a teen chat for people with Chronic Illness mainly geared towards teenagers with Lyme. She has suffered greatly from the disease but has pulled through none the less she is a wonderful teenager and has kept in touch with me greatly throughout this whole ordeal. She has inspired me with her way she has approached this disease and taught me that nothing is impossible and a little determination can go a long way. She is just as unique as her name and she continues to support those who suffer as she gets better and stronger each day. She's still on IV antibiotics but she's doing increasingly better as time passes. So with this I would say she is definitely inspirational in her ways and a teen activist.
Keep registering for the walk and please mail in your pre-registration's by May 16th to our P.O. Box at-
Lyme Walk
P.O. Box 74
Big Flats, NY
14814
Thanks for all of your support and enjoy the spring weather!
Love,
Victoria
2 comments:
Victoria, You need to sign your poem/creative writings so others realize it is you and not someone else's writings. I went back and reread the poems, "Buster", "Hospital Wall", "Friends"
You show great talent in your writings, keep it up!
Aunt Debbie
Victoria,
A year and a half ago I was diagnosed with Lyme disease, after the doctors first thinking that it was mono and a ton of other stuff. Praise God my situation is not as close to as a serious as yours, and I am doing tons better, but last year was hands down the hardest year of my entire life. I missed so much school, my friends didnt seem to understand, and I felt as though everyone thought that I was "dramatizing" the diagnosis. No one seemed to get how bad I felt. I became depressed, and was in a depression for 9 months. I was on the verge of an eating disorder, and was always in a terrible mood. Lyme ruined my first year of high school for me! Because of that, I want to fight it- and I don't want it to hurt anyone else. I'm praying for you, Victoria! God will pull you through- he doesn't give us anything we can't handle. I'm going to talk to my parents about doing the lyme walk- more people need to know about this disease, and how it tears people apart.
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