Friday, March 28, 2008

Feeble and Fortunate on a Friday

All morning and afternoon I slept as much as possible due to the fact I am trying to heal. I also was able to get up and moving around a little as the day went on. My right lung is still struggling a little and is very painful to breathe deep breaths but I keep trying to breath in and out nice and big to hopefully find it not so painful one of these times. I keep working with the blue thing that measures my air pressure and I can't seem to get it much further than zero. I thought it might be broken... But then my dad got it to 2000. So it's definitely not broken!

I am very fortunate that my father is home with me because although he and I can get a little upset with each other he stands up for me and he has helped me a great amount. He sticks by my side and tries to get as much as he can done in little amounts of time.

We're prepping for next Wednesday and I got some blood work done to check my levels and see how everything is going there today... So for the next few weeks I will continue to go to the hospital for my infusion and then hopefully after the placement of the port we will be able to just go once a week to get the needle changed... That's hopefully the new plan of attack will allow us to do the infusions at home like we were doing with the picc and give us a little more freedom so we aren't constantly at the hospital.

My body is weak and I can feel that but, I know that I can get through this and I am fortunate to have so many people to stand behind me...

Tonight- This goes out to ALL LYMIES everywhere and anywhere-

We're spot-lighted-

I have met some of the most miraculous people on my journey to good health and you know how they say in the US Army an Army of One? I visualize us all as an Army of one. For we must band together to be strong and carry on to support each other and help each other through the hardest of days. I hope that each lymie that reads this will take this and know each night, I pray for every lymie those who have been diagnosed and those who are yet to be diagnosed. This disease is not fun and has brought down families of many. And together we're standing strong to carry on and fight the disease that many doctors are ignorant of. So tonight I spot-light a large group of people my support system of other lymie's and I say here's to a cure in our future! I am doing my best to help the cure become a reality and you can too just by sharing a little bit of light about Lyme Disease and what you have learned.

Thanks so much guys!

There is one person especially and specifically I am choosing to spot-light that touched my life very deeply in the last 24 hours and deserves some glory and fame. Her name is Joy. Joy to me is a very wonderful woman on the inside and the outside and I met her my first time I did a play at church she played a character who was quite humorous and always bickering with our other "neighbor" in the play. Over time Joy and I have had limited contact and she and I haven't always been able to stay in touch. Although when we do see each other there is one thing Joy never lacks and that's a smile. She is so upbeat and she is such a wonderful woman. She amazes me with her faith in God and her sincere compassion towards children and her family. She continues to be strong even throughout all of the adversities she has spoken to me and not spoken to me. She really deserves to be a special spot-light and I am thankful for her. What an awesome woman. Thanks for bringing Joy to my life Joy!

I hope this weekend is full of lots of rest and healing... For church is just around the corner!



1 comment:

Anonymous said...

Hey Gurrl-
Just stay in there. And get lotz of rest,and before ya no it,ur lungs will start feeling a lil' better,so that it's not so hard and painful for you to breath. I know it must be very complicated, and terriblly painful for you,to do practiclly anything and everything,in life.

with much love-kayla xoxo