Wednesday, March 19, 2008

Re-Vamp of the blog

A few of my friends said my blog needed some re-vampin' so today I went on a quest to re-vamp my blog. So now with a new format and basic color for all of the posts... I have re-vamped the blog. This was pretty confusing for me so don't expect it to happen again! haha

The winter days are quickly passing and I can only hope that warm weather will be here soon to ease the aching joints and bring spring delight! I can't wait to see the tulips bloom again and soon the pot garden we are beginning will be able to sit outside in their pots and bearing vegetables of all sorts. For those of you who don't know- as a symbol of new beginning I have started a salsa garden and let me tell you the Roma tomatoes are growing like nobody's business. I hope to add some herbs and other veggies to our little indoor garden but right now I do believe we're working on 7 different types of seeds and they seem to be growing well. I will post pictures in another few days.

Physical Therapy was yesterday- and get this: I ran out of sweatpants!! So I couldn't really go with my work out gear in jeans so I decided that I would wear super cool socks instead and that's just what I did. Although I have some plans for the upcoming session tomorrow and it has been confirmed that I do have clean sweatpants for the event. Although I am improvising a bit due to the fact that I don't have a head sweatband but oh it shall be good. I also finally gave my physical therapist my blog site so she could check it out... So now she's probably reading this either approving or disapproving of all I have said about her. I am sure I will hear about it. :) We may even have to take a photo of the get up from tomorrow's session. That's just how good it's going to be. I have been progressing well- she has taught me how to walk with a cane and yesterday my dad took me to the store and we got a pretty fancy blue cane with white flowers on it. So I can practice around the house. Although I am noticing when I get tired that the walker is very handy to have because the cane isn't giving me enough support. But I am getting stronger which excites me.

We have yet to hear back from the doctor... He is trying to create a plan for us and we were told we should have it by Tuesday night- here we are it's Wednesday and we do not have a plan. So I am not sure about the IV things but I am going to the infusion center now and they have set it up to go through there rather than Pediatrics. So that's the plan at the moment since I do not have an official one I think that's the plan anyway. :-P

Things have been so chaotic I have been overwhelmed with my own life and any friends that are still talking to me I am amazed... Because it has just been so up and down. ER visits, hospital time, doctors appointments, Chiropractor appointments, and Physical Therapy. I am at the hospital every night now, I have to go to Owego 2 times a week right now for the Chiropractor, and I have Physical Therapy 3 times a week, plus my PCP throws in appointments at least every week or every other week it seems... So for those of you who thought it was a lot of sleeping being me- it's becoming more and more car rides and lots of appointments.

More than ever in my life I miss my old life and being sick is just kind of wearing on me... Mostly I think because I have lost contact with a lot of friends that I was talking to to frequently because I used to be the first person to contact them and now that I rely upon others to contact me... They don't really do it as much. And I don't have the time to sit down and actually think about calling people plus the service in the hospital is horrible. I guess you're not even supposed to be using your cell phone in the hospital but no one has ever said anything to me...

S0 that pretty much sum's up what has been going on lately. I am preparing to talk to a class the 26th (next Wednesday) as a favor for one of the teachers at school. Which I am excited about plus it will get my butt out of bed a little earlier.

My Spot-light Person for the day-
is continued from the other day. Jessica Stevens- This girl deserves two days of being spot-lighted and also needs lots of prayers. She has helped us immensely with my walk with Lyme and has become a close friend of mine. She is very confident in her faith with the Lord and despite her being so sick she has been able to continue with a positive attitude... She just had her 20th birthday this past January and she continues to fight on despite doctors saying she probably never will walk again and she is probably the worst case of Lyme I have ever heard of. She has so many problems but they don't stop her and she has kept on no matter what. And she gives me even more of a reason to fight for awareness and gives me a reason to keep getting better. She is such an awesome girl I can't say enough good about her! But most of all please pray for her- she is in the hospital and she's going through some very very complex procedures that are rarely used. Thanks for your support!

Hope everyone is enjoying the sunshine and have a wonderful day,

Victoria

4 comments:

Janell said...

Wow! A salsa garden sounds yummy!
I can't wait for Spring, either. My kids have been playing outdoors every chance they get (they are 5, 2, 2 and 1). Spring just seems to bring new hope, don't ya think?
A new cane...blue with white flowers sounds really cute! It's a good thing they have some fun ones to match your personality, right? :O)
Well, take care and I look forward to reading more of your blogs! Have a great one!

Lauren said...

Hi Victoria!

I saw your comment on my blog. I'm so sorry you are going through all of this too. I'm going to read more of your blog entries tomorrow. It sounds like you have had a very tough time. I'm so sorry for that! I will definitely be keeping up with your blog. I hope and pray you improve every day... until you are completely better. Please keep in touch.

Hugs,
Lauren

Anonymous said...

Hey Victoria-this is kayla meyers. We were close friends in BigFlats Elementary School,but I moved away in 3rd grade.And I read your story in the newspaper a little while ago.And I just found your website. I go on pretty much everyday to read the recent updates that you add onto it. I'm really sorry to hear that you've got Lyme Disease. It must be a really horrible thing the live with. Every-since the first time I heard about your disease I've sent out prayers for you,to get better. Things in life must be a little harder for you now,than it use 2 be.. Well Me and My Mom are gonna do the Walk 4 Lyme Disease. And hey we might even be able to see eachother again! Keep Me Up 2 Date,Love-Kayla xoxo

Anonymous said...

Hey Victoria-
Just wanted to tell you that Im thinking about you.

All The Best Wishes!
Luv~kayla(kay)